Screaming Banshee

Screaming Banshee
Make Sure You Laugh When There Are Days Like This!!!

Tuesday, November 4, 2008

My mantra will get me through...

I'm going to London. I'm going to London.

Whatever else is going wrong, or stressing me out, or concerning me...

I'm going to London. I'm going to London.

Regardless of my finances, and the stress therein.....

I'm going to London. I'm going to London.

Even if I have to bend over and take it for the next 4 years as I'm over-taxed and have to charge my groceries to my credit card on a more frequent basis....

I'm going to London. I'm going to London.

Even if my "wealth" is being shared to help those less fortunate, and I may have to work at McDonald's in order to afford living.....

I'm going to London. I'm going to London.

Philosophical Question: If you tax anyone who makes over $42k to spread the wealth to those who don't, how close is that to socialism?

OK. Don't go political Ape-shit on me! This is my angst-filled opinion, who agrees that there needs to be change. I just don't think it needs to be so drastic, and that action plans need to be formulated, and agreed upon before jumping into things.

BESIDES, this is my blog and I'll whine if I want to!

Monday, November 3, 2008

I LOVE my horoscope!

NO...I am not an astrological guru or freak.... my horoscope is on my Yahoo page, so I see it every day when I open up the internet. Check out today's!

November 03, 2008
Gemini (5/21-6/21)


Unless it's the big boss dictating a firm rule, you don't have to obey anyone except yourself, today. If people are trying to put restrictions on what you can do, work your way around them! You are the one in control of your life, and it's the right time to remind yourself of this face. Point your ship wherever you want it to go, and start off on your journey. Just fulfill your own goals right now -- worry about following all the rules later.

HYSTERICAL!!!! That's pretty much me on a daily basis :).
So, I forwarded this to my supervisor and gave her a heads up in case she saw my ship pointing toward the Bahamas!

Wednesday, October 29, 2008

CF Appointment - 10/29/08

Good stuff at today's CF appointment. I'll provide stats, then some awesome research news...as close as ever to a cure!

Height: 54.7 - up 1.3 in.
Height %: 10% - up 1%
Weight: 76 lbs. up 3.75 lbs.
Weight %: 22% - up 1%
BMI: 17.83
BMI %: 49% - GOAL = 50%.......last visit 52%..... The kid grows which is what they want, AND gains over 3 lbs, but her height didn't go up as much as her weight.....Go Figure! Time to get out the stretching machine again :).
PFTs (breathing test) = 108...decrease of 7 from last appt., but still excellent!
Last throat culture showed light pseudamonas. OK. We are doing the TOBI every other month, so we are doing what we can for now. If it were to drop massively, then we worry (some of the other PFT stats indicate this could be margin of error).

RESEARCH NEWS:
Dr. Z was on rounds today. She heads up numerous research projects and reports out to the medical community and the local parent community on this at least yearly.

I asked if there was any research down the road for a DeltaF508 & R1162X person (Ginny's "mutations", as they like to call them!). She told us there had recently been a very promising research on the GG-something group. We all have CFTR channels which just happen to be blocked in folks with CF. Different genotypes lead to different manifestations.

So, this recent research caused the CFTR channels of the GG? group to act as the CFTR channels of "normal....non-mutant" people. WOW!!!! Basically, a cure of the issue, but not a way to be off of medicine and breathing treatments.

There is a research study of the same type coming for those that have the "x" codon. Lucky us!!!!!! She may be eligible to particpate, but she may also be too healthy to participate. Regardless, let's get this medication on the shelf so Ginny's CFTR channels function properly while she has no lung scarring and issues!!!!

I'm tired now.....

Friday, October 24, 2008

Repairs Needed

So many things broken, so little time....

My dryer isn't drying;
My freezer isn't sealing;
My heat pump doesn't turn on.

Then........ there's me!
I have the flu...
Fever;
Chills;
Aches;
Exhaustion;
Raw throat.

I've got space heaters running, my freezer is held closed with duct tape, and I've got laundry all over the place. It hurts when I move, and it's hard to stay awake for too long.

Where's MY Fairy Godmother???!!???

Tuesday, October 14, 2008

To Buy or Not To Buy

So, I've kinda got the "wansties" right now.

I live in a townhouse. It's a great layout, good size, deck, good neighbors, and is in a community that is over 30 years old.....this means there are large trees and the homes were actually built with space so I'm not staring into my neighbor's house as they are eating dinner or getting dressed.....this, I find to be a bonus.

HOWEVER........I want a house. I want a house with no one attached to my walls (my neighbors aren't loud). I want a garage cuz I'm sick of scraping ice off my car in the winter, defogging during the fall & spring, boiling in the summer (although, there is the tree coverage which keeps my car from getting too hot).

BUT.......Do I really need a house? That would mean a yard to mow. My son is in 9th grade and enjoys pointing out to me that he will be going to college in 4 years and won't be home (he will be home during vacations, he just doesn't realize that yet).

YET.......He does bring about a good point. Most people downsize as their children leave the nest. I would be upsizing for what? for for who?

So, I ask you: Do I really need a house?

Wednesday, October 8, 2008

Really good stuff!

Yesterday, I was in an all-day face-to-face kickoff for an online course. I'm the support person for the instructor. I was posting some of her suggestions online as she spoke to the group, posted her resources in our online communities. I was helping the students with best technology practices and getting them enrolled into the course online. I had a really great time interatcting with the students, being there for the instructor and playing around with the technology.

As soon as that group cleared out, it was time for me to prepare for my team's presentation in my graduate certificate class. I was focused on Behaviorism.....which I LOVE!!!!...It was all about Pavlov's dogs & Skinner's rats....Thank you, DR. RAY!!!!

All of this was so great, so exciting, and exactly what I want to be doing.

So, why was I so homesick!I just wanted to sit in my parents' family room while they puttered around and I geeked around online. I didn't need anyone to take care of me, feed me, or anything. I just wanted them around.

Saturday, September 27, 2008

I would do ANYTHING to help my Dad!

In recent years, I have taken vacation days from work and have gone to Florida to:
-help my Dad set up new computers and transfer files
-been his HelpDesk when there have been technical difficulties (mainly user error)
-spent a week helping him get around and do his physical therapy after knee replacement

He has recently made another request of me. Though I am tired, taking on more work responsibilities, back in school, and want to save vacation days, I just don't think I can deny him this request. He called me the other day, and in order to maintain his platinum level status in his travel club, he must go to London......England, that is. He would like me to go with him.

*SIGH*

Once again, I will sacrifice for my father the way my parents sacrificed for me.