CF Appt - June 2008

Well, we had another CF appointment today, as we do every 3 months. It's physically and emotionally draining even when it goes well. We were there for over 3 hours today, which led to the 3 hour nap I took upon arriving home. That will lead to me being up much of this evening......bad cycle to get in :).
The reason it was 3+ hours today vs. the regular 2+ hours, was due to the fact that it was her bloodwork and x-ray appointment. Bloodwork is once a year, x-rays are every other year.
Here's the update:
Height = 53.4 inches = 9th percentile (can't imagine why she's short!!!)
Weight = 72.25 inches = 21st percentile
BMI = 17.73
And here's the big info about this one. They've wanted her to be at the 50th percentile for BMI for a long time. Today, we hit that goal!!!!!!!
BMI PERCENTILE = 52% YAYAYAYAYAYAYAY!!!!!!!!!
PFTs= 115%
PFT means Pulmonary Function Test. While a 115% lung function sounds good, she was at 134 last July. She went down over the last 2 appointments to a low of 101% at her March appointment. So, she is up almost 15%!!!! That's great news!!! Now, we just need to stay on top of her nebs (Pulmozyme, Saline, TOBI) and her chest PT to get that number back up to her norm of over 130%.

Once Ginny went on the "hungry pill" (as we call it since the name is something I can't remember), she jumped from a BMI in the 29th percentile to the 46th. How great was that!!!!!

CONGRATS GINNY!!!! You are an amazing young lady!